I was home from work again today. It was a different experience, though. I spent my time in a dreamy, queasy, narcotic fog. Bone pain's back... familiar but not a friend. My spine, scapula, clavicle, sternum, hip, The Works.
It's been a while since I've taken these drugs. I don't mind a day of napping now & then. It's pleasant enough when the pain is controlled. I wouldn't choose it as an ongoing lifestyle, though.
Something's gotta give, and I'm hoping it's not one of my tired ol' bones or my sad ol' liver.
Drowsy & dreamy day... taking drugs and trying to eat and watching the worst of the worst programming on television. Somehow the worst of the worst is more satisfying to me than the best of the best. The best so often falls short. The worst is amusing either way. Bring on the music videos from India and reality TV
I was sorry to see Edwards drop out of the Democratic primary race. I know it was inevitable, but I liked having a third voice... particularly one that spoke about poor people. He impressed me very much when he was running w/ Kerry precisely because he spoke of poverty in America, which is an oddly and unquestionably uncomfortable subject.
Wishingwishingwishing for a better day tomorrow. Today was okay. Today was doable. But just a slight improvement tomorrow would be welcome.
Wednesday, January 30, 2008
Tuesday, January 29, 2008
Priceless
I've been married to Eric long enough that I no longer question why he knows the things he knows. He just does. I'm not surprised when he mentions that Ry Cooter was a pioneer of digital recording, or when he quickly identifies two or three products I've seen lately that were designed by Isaac Mizrahi (and then answers when I ask "who?")
Eric just knows.
In twenty years I've never seen Eric sit down to watch a sporting event on tv. He's watched a game or two at my request -- a world series game, or the super bowl. But on his own? Not once. He has no interest in baseball, football, basketball, hockey, soccer, golf, or tennis. BUT... he knows about the players, and the games. Why ask why?
Eric can rebuild an engine, make a Bearnaise, and explain the quadratic formula to a fourteen year old. He can tell the truth, and say "no" with a smile. He can grade papers in a chemotherapy suite. He can name the longest river in the world, the largest desert in the world, and he can tell you how a refrigerator works.
He can juggle five balls and does a mean Gollum impression. He can make me laugh, always -- every single time -- by pretending to be the The Fighting Aubergine. I just adore him. Absolutely adore him.
I'm thinking about Eric today as I sit her at home. Again. Too sick to go to work, or to do anything else for that matter... but well enough to be bored. It's a strange position. I want to feel like a day home to rest is a BONUS, but I'd really much rather feel better and go to work.
I miss Eric, too. Can you tell?
Eric just knows.
In twenty years I've never seen Eric sit down to watch a sporting event on tv. He's watched a game or two at my request -- a world series game, or the super bowl. But on his own? Not once. He has no interest in baseball, football, basketball, hockey, soccer, golf, or tennis. BUT... he knows about the players, and the games. Why ask why?
Eric can rebuild an engine, make a Bearnaise, and explain the quadratic formula to a fourteen year old. He can tell the truth, and say "no" with a smile. He can grade papers in a chemotherapy suite. He can name the longest river in the world, the largest desert in the world, and he can tell you how a refrigerator works.
He can juggle five balls and does a mean Gollum impression. He can make me laugh, always -- every single time -- by pretending to be the The Fighting Aubergine. I just adore him. Absolutely adore him.
I'm thinking about Eric today as I sit her at home. Again. Too sick to go to work, or to do anything else for that matter... but well enough to be bored. It's a strange position. I want to feel like a day home to rest is a BONUS, but I'd really much rather feel better and go to work.
I miss Eric, too. Can you tell?
Monday, January 28, 2008
Monday
Eric and I have an Oscar Nominee Weekend tradition. Over one weekend (including Friday evening) we'll see all of the nominees for Best Picture that we haven't yet seen, and sometimes we've included the Best Actor and Actress performances, as well.
I believe we'll continue the tradition this year, but I really don't want to see any of the movies. It's kinda sad. The nominees are:
Atonement
Juno
Michael Clayton
No Country for Old Men (the only nominated movie that we've seen)
There Will Be Blood
That's just four movies to see ... not too bad. Still, I'm just not psyched for those movies.
I'm home from work today... just not sure how I feel about this chemotherapy -- or, how this new chemotherapy makes me feel. We'll see.
I believe we'll continue the tradition this year, but I really don't want to see any of the movies. It's kinda sad. The nominees are:
Atonement
Juno
Michael Clayton
No Country for Old Men (the only nominated movie that we've seen)
There Will Be Blood
That's just four movies to see ... not too bad. Still, I'm just not psyched for those movies.
I'm home from work today... just not sure how I feel about this chemotherapy -- or, how this new chemotherapy makes me feel. We'll see.
Friday, January 25, 2008
That's All
It's been a cold, rainy, few days here in Oakland, California. Haven't had much to say lately or much energy to say it. I'm glad it's the weekend. I'm glad I'm spending the weekend with my handsome husband.
Tuesday, January 22, 2008
When the fat lady sings.
There are so many people in the world who believe that they'll be reunited with their loved ones in death. If pressed they'd probably have to admit to believing that they'll be reunited with their enemies, as well, but they're all figuring to be better spirits in heaven than on Earth.
Or maybe it's a small majority who've bought into the Family Circus model: Grandpa peeking over the clouds, watching fondly as little Billy runs a circuitous route through home and garden.
People speak of spirits, souls, the cosmic consciousness... reincarnation and a zillion other post-life conditions -- including conscious, eternal, torment in hell -- for which their exists not one shred of evidence.
I'd say that it must be nice to hold such beliefs... that it must be a great comfort... but it'd be like saying I wanted to crazy glue scales to my eyes. I wouldn't take a delusion pill if it was offered. I think.
But I will be taking chemotherapy pills very soon -- this week, or next week. It's another nasty (hopefully effective) drug, but this one's in pill form. In multi-pill form, really. I'll be taking a small handful of 'em in the morning and the evening.
This raises a question for me. If the pills make me feel sick, will I make myself take them? There's something about a scheduled appointment to show up for a 7 hour IV drip that takes some of the personal choice away. Not all of the choice, but enough that I can disconnect from the experience a bit.
But to swallow pill after pill...
Well...
No point in borrowing trouble.
Maybe it won't make me sick. Maybe it will shrink the cancer. There's about a 20% chance it will work for two or three months, anyway. Which is better odds than I'd give the likelihood of being reunited with loved ones in death.
If that's a belief you hold, I'd like you to think about it. Really noodle it for a few minutes and try to figure out the basis for your belief. Unless you're a Christian.
If you're a Christian, please don't think about it all. What's the point?
Or maybe it's a small majority who've bought into the Family Circus model: Grandpa peeking over the clouds, watching fondly as little Billy runs a circuitous route through home and garden.
People speak of spirits, souls, the cosmic consciousness... reincarnation and a zillion other post-life conditions -- including conscious, eternal, torment in hell -- for which their exists not one shred of evidence.
I'd say that it must be nice to hold such beliefs... that it must be a great comfort... but it'd be like saying I wanted to crazy glue scales to my eyes. I wouldn't take a delusion pill if it was offered. I think.
But I will be taking chemotherapy pills very soon -- this week, or next week. It's another nasty (hopefully effective) drug, but this one's in pill form. In multi-pill form, really. I'll be taking a small handful of 'em in the morning and the evening.
This raises a question for me. If the pills make me feel sick, will I make myself take them? There's something about a scheduled appointment to show up for a 7 hour IV drip that takes some of the personal choice away. Not all of the choice, but enough that I can disconnect from the experience a bit.
But to swallow pill after pill...
Well...
No point in borrowing trouble.
Maybe it won't make me sick. Maybe it will shrink the cancer. There's about a 20% chance it will work for two or three months, anyway. Which is better odds than I'd give the likelihood of being reunited with loved ones in death.
If that's a belief you hold, I'd like you to think about it. Really noodle it for a few minutes and try to figure out the basis for your belief. Unless you're a Christian.
If you're a Christian, please don't think about it all. What's the point?
Monday, January 21, 2008
Monday Off
An uneventful 3-day weekend. Did a whole heap o' nothing.
Getting a bone scan tomorrow, which is a several hour process. First the injection of radioactive isotopes, then a loooooong wait.
Eric is going with me. It's just too much, now -- can't do it on my own.
I saw several pictures of my brother Mark today that I'd never seen before. He was killed in 1989. There was something about it ... the newness of the pictures, I think... that made me very sad. He looked so young. He was young when he died -- just twenty-six years old -- but he was still my big brother.
Now he's just a baby to me.
He told me once that he didn't think he'd live to be thirty. I can picture the oonversation. I can here his voice, hear his words. We were sitting on the front lawn of my familial home. I didn't think much of his prediction, and I still don't think he had a premonition. It was more like an unlucky guess, I think.
Anyway, those pictures threw me.
Getting a bone scan tomorrow, which is a several hour process. First the injection of radioactive isotopes, then a loooooong wait.
Eric is going with me. It's just too much, now -- can't do it on my own.
I saw several pictures of my brother Mark today that I'd never seen before. He was killed in 1989. There was something about it ... the newness of the pictures, I think... that made me very sad. He looked so young. He was young when he died -- just twenty-six years old -- but he was still my big brother.
Now he's just a baby to me.
He told me once that he didn't think he'd live to be thirty. I can picture the oonversation. I can here his voice, hear his words. We were sitting on the front lawn of my familial home. I didn't think much of his prediction, and I still don't think he had a premonition. It was more like an unlucky guess, I think.
Anyway, those pictures threw me.
Thursday, January 17, 2008
And a one and a two
I've had a song stuck in my head for two days. I won't say what it is because I don't even want to type the title. I don't want to look at the words. I think they'd burn my retinas.
I've tried replacement songs. I've been working on the railroad, but it didn't erase the offending song from my brain. Things may be great when you're downtown, but the song remains the same.
Other than that... I'm just hanging out and looking forward to a three day weekend.
I've tried replacement songs. I've been working on the railroad, but it didn't erase the offending song from my brain. Things may be great when you're downtown, but the song remains the same.
Other than that... I'm just hanging out and looking forward to a three day weekend.
Wednesday, January 16, 2008
Same Old
Wish I had something new to say!
I slept for 13 hours yesterday, after work -- still was sleepy this morning.
I'm looking at Eric. He's handsome and smiling. We're watching television and I'm drinking seltzer water from a pretty glass with a straw. When I fell in love with Eric I fell in love forever.
I slept for 13 hours yesterday, after work -- still was sleepy this morning.
I'm looking at Eric. He's handsome and smiling. We're watching television and I'm drinking seltzer water from a pretty glass with a straw. When I fell in love with Eric I fell in love forever.
Monday, January 14, 2008
Turn to face the strange chachachanges.
It was a better day than many recent ones. Went to work... was sometimes able to forget about being so green around the gills.
Eric and I met with my oncologist this afternoon. It's not quite a crisis, but it's getting there -- baaaad numbers coming back from tests... signs of serious liver problems pending... was told today that my liver is "going sour". I believe it.
So I'm done with my current regimen. I'll have a two week break. During that time I'll have yet another ct scan and bone scan. Then I'll start a new chemotherapy.
I was given several from which to choose. Doesn't matter much which one I choose on accounta each of them will either work (less likely) or won't (more likely).
Cancer treatments have diminishing returns, over all. Your best bet is your first line treatment. Your second best bet is your second line treatment. I'm looking at third line. It was gonna happen -- could have happen a year ago, and could have happened a year from now.
And, anyway, it's always a crap shoot. Having held the title of highest ranking female craps player, I know that anomaly happens.
So I'm hoping for an anomaly... a treatment that is 1. effective 2. for a bit & a while, that 3. doesn't make me feel too bad. Could happen.
Could.
Eric and I met with my oncologist this afternoon. It's not quite a crisis, but it's getting there -- baaaad numbers coming back from tests... signs of serious liver problems pending... was told today that my liver is "going sour". I believe it.
So I'm done with my current regimen. I'll have a two week break. During that time I'll have yet another ct scan and bone scan. Then I'll start a new chemotherapy.
I was given several from which to choose. Doesn't matter much which one I choose on accounta each of them will either work (less likely) or won't (more likely).
Cancer treatments have diminishing returns, over all. Your best bet is your first line treatment. Your second best bet is your second line treatment. I'm looking at third line. It was gonna happen -- could have happen a year ago, and could have happened a year from now.
And, anyway, it's always a crap shoot. Having held the title of highest ranking female craps player, I know that anomaly happens.
So I'm hoping for an anomaly... a treatment that is 1. effective 2. for a bit & a while, that 3. doesn't make me feel too bad. Could happen.
Could.
Sunday, January 13, 2008
Sunday Night
I quiet, queasy, weekend. Eric's mother was here visiting. It was all fine. Tired and not looking forward to work tomorrow. What else is new?
But I do feel a bit better, and I hope that trend continues. We'll see!
But I do feel a bit better, and I hope that trend continues. We'll see!
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